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Yes I know it's been a long ass time but hey here's an update!



Yesterday, Quentin was diagnosed with autism. 


This is probably a surprise to, well, all of you. For us as parents, it only confirmed what we've been thinking for a little while now.

Autism Spectrum Disorder (ASD) is, *surprise* a spectrum. This quote from Dr. Stephen Shore sums it up well

"While the commonalities of people on the autism spectrum include differences in communication, social interaction, sensory receptivity, and highly focused interests, it’s important to understand that the constellation of these characteristics blends together differently for each individual."

For Quentin specifically, being autistic means several different things; 
Transitions are really hard for him.
His focus is truly incredible. Good luck trying to pry that kid away from his bead maze!
Eye contact is tough. He does not give it often and rarely is it sustained.   
He has a fairly significant speech delay, so he communicates differently.
He doesn't point at anything which, coupled with his speech delay, makes most things frustrating for him, and meltdowns are frequent.
Playing independently is his jam!
He does not answer to his name (or any of the cat's names).
Sometimes he needs extra help eating and prefers to eat with his hands.
  
Quentin is still Quentin. This diagnosis does not change anything about him, it only helps us to better understand him. 

Naturally, Brian and I have had our moments of grief.  When your child can no longer say "mama" and "dada", it hits hard.  It's normal to feel a sense of loss and sadness, but it's so important to remember that this is NOT about us.  It's about a sweet little boy who is going to need a little extra support in life.

We are very focused on the future.  Quentin will start therapy in the coming months, and we likely have a spot in a community school that will be really great for him.



Quentin is happy, smart, loving, and healthy. What more could we ask for?



Feel free to ask questions in the comments, I'll answer to the best of my abilities.


Comments

Unknown said…
Thanks for sharing Katy and Brian! We love Q, and you put this so beautifully, that he’s still him, this just helps understand him more. Excited for our next trip to Az to spend more time together. :)
Juanita Rice said…
Thanks for the details, Katy. :)
Sharon G said…
So beautifully said, Katy! Q is still Q and we love him dearly. Learning how to best communicate, relate, play and learn together with him is all we want to do. And to simply love and cherish him. I cant wait until COVID restrictions are over and we feel comfortable hugging and being close again!

Love you all so much!

Sharon/Mom
Jim said…
Thank you for sharing Katy and Brian.
I'm with Sharon on this; she said it well.

Dad
Anonymous said…
Thank you for sharing. ❤️ He’s a precious punkin with precious parents. We love you all! 🙌☀️❤️ -Aunt Danni and Guys

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